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Healthcare Providers Patients

The True Potential of Patient-Generated Health Data

There is no doubt that aggregated health data will continue to shape the future of healthcare. There are vast amounts of data available in today’s society, and health researchers are tapping into it to advance medical science. Large sets of data are regularly compiled and analyzed, and the findings are used to predict epidemics, cure diseases, provide better preventative care, and lower healthcare costs, among other positive things. The widespread adoption of electronic health records and the increasing prevalence of internet-enabled medical devices are creating even more opportunities for valuable data collection. While this unlocks very exciting possibilities for healthcare scientists and providers, where does the patient fit into all of this?

Patient-generated health data (PGHD) is defined by The Office of the National Coordinator for Health Information Technology as “health-related data created, recorded, or gathered by or from patients (or family members or other caregivers) to help address a health concern.” This includes health and treatment histories, symptoms, lifestyle choices, biometric data, etc. When used in conjunction with existing clinical data, PGHD can provide additional insight into an individual’s overall health and better inform decisions made by care providers. The use and sharing of PGHD can gather important information about an individual’s well-being between medical visits, allow for shared decision-making in preventive and chronic care management, and ultimately improve the cost, quality, and coordination of care.

Trust between patients and providers is a cornerstone of the medical profession and higher levels of trust result in improved health outcomes. In the Digital Health Technology Vision 2018, Accenture found that ninety-four percent of health executives believe that treating customers as partners is important or very important for gaining consumer trust. By its very nature, PGHD creates a valuable opportunity for an individual to become a true partner in their own care. Through the process of supplying data the provider would not have access to otherwise, the patient is given a voice and empowered to actively engage in their health. The power of this voice is further supported by today’s wellness apps, wearables, and fitness trackers, which are increasing consumer engagement with personal health data. However, as with any opportunity, there are potential challenges that need to be addressed.

First of all, electronic health records (EHRs) suffer from a lack of interoperability. The major benefit of PGHD is it can supplement the information found in EHRs to provide a more comprehensive picture of an individual’s health. This benefit cannot be fully realized if patient data is fragmented and siloed across multiple providers and IT systems. Another concern is data privacy and security. We are faced with the reality of hackers and data breaches almost daily, and consumers will be less willing to provide PGHD if they believe their personal information is at risk. Patientory’s distributed application uses blockchain technology to address these concerns and empowers individuals to compile and manage their own health information from multiple providers and wearable devices. They can then securely share their comprehensive health picture with the healthcare provider(s) of their choice, which allows all stakeholders to benefit from the use of PGHD. Learn more about our solution here.

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Blockchain Events

Blockchain Panels from ConV2X Now Available for Listening

Patientory attended ConVerge2Xcelerate in October, a healthcare modernization event that brought together the foremost innovators and leaders in blockchain technology, telehealth, AI, and other technologies. The intention of the conference was to address the most compelling issues, growth opportunities, and financial implications of these technologies for the healthcare industry.

Patientory CEO Chrissa McFarlane spoke on two different blockchain-focused panels at the event. The full audio for both panels is now available from Blockchain in Healthcare Today. Follow the links below to listen to the discussions.

Panel 1: Tokens & The Internet of Value: Blending Game Theory, Computer Science, Psychology, and Economics

Panel 2: Data Sharing? The Case for Blockchain at the Global Convergence of Healthcare, Life Sciences, and Consumer Markets

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Patients

Returning the Control of Health Data to the Consumer

The vast amount of data available in today’s technology-driven and hyper-connected society is astounding. We create data everywhere we go with our smartphones, tablets, and laptops, and the increasing prevalence of the Internet of Things means that even more of the devices we interact with on a daily basis are gathering and sharing information. The application of this information through the creation and interpretation of large data sets, i.e. big data, is becoming an increasingly valuable economic force. Organizations in both the public and the private sectors are leveraging big data across industries, including healthcare, to develop more effective practices, inspire innovative breakthroughs, and better serve consumer needs.

The growing role of data in our lives and the data trading markets that have arisen raise important questions about data access and ownership. Who rightfully owns data, the individual creating it or the organization collecting it? Who has the right to access all of this information and what are they allowed to do with it? Who ultimately has more control when it comes to data use, the individual or the organization? Unfortunately, there is not a clear answer to these questions because in many cases our laws simply have not caught up yet. When it comes to electronic health records in the United States, providers are technically the owners (in every state except New Hampshire) since the data is recorded and stored on their IT systems.

One example of new data-related legislation, which came into effect just this year, is the General Data Protection Regulation (GDPR), enacted by the European Union. The goal of the law is to ensure better data protection and privacy for all individuals by enhancing their rights when it comes to the handling of their personal information. The new rules require organizations to ensure that consumers explicitly consent to data collection and clearly understand the type of information being collected. Individuals in the EU now have the right to access their personal data, to request corrections to inaccurate data, and to restrict the use of their data. Although the full impact of the GDPR remains to be seen, it is a step in the right direction towards consumer empowerment when it comes to data.

There is no doubt that big data will continue to shape the future of healthcare. It is being used to predict epidemics, cure diseases, provide better preventative care, and lower costs, among other positive things. However, individuals have a surprising lack of control when it comes to their own health information. They are often asked to sign away health data ownership via blanket consent forms at times when they are scared or vulnerable, such as before surgery. Consumer rights need to be evolving alongside the use of data in healthcare. Patientory believes individuals should be able to easily access their own comprehensive health data and manage the use of it on their own terms. This is why we developed our distributed application. You can learn more about our solution to healthcare data access and control here.

Categories
Blockchain

Can Blockchain Help Companies Become GDPR Compliant?

The General Data Protection Regulation went into effect in the European Union this year, but the full impact of the groundbreaking legislation still remains to be seen. The new rules were enacted to further protect consumer data rights in regards to data storage and businesses were required to comply. However, one of the major provisions requires companies to allow consumers to withdraw or edit their personal data from a database, which poses a challenge to the immutable nature of blockchain.

Andrew Arnold, a contributor to Forbes, believes compliance is still possible. Blockchain simply offers a new, more secure method of processing and storing large amounts of data. In his words: “In fact, embracing blockchain-based identity management means assuming ‘privacy by design’ –  the biggest demand from the regulators. And blockchain technology can become businesses’ strongest ally in meeting GDPR regulations without many troubles.” To read more about possible solutions for aligning blockchain with the GDPR, click here.

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Blockchain Events

Blockland Solutions Conference Highlights Cleveland’s Blockchain Efforts and Patientory

Cleveland, Ohio is working hard to lead the way in becoming a cryptocurrency and blockchain friendly city. There is a downtown technology hub in the works as well as a new think tank devoted to blockchain technology research and adoption. Many of the region’s universities, such as Baldwin Wallace, are already incorporating blockchain into curriculums. Additionally, Ohio just became the first state in the nation to accept cryptocurrency for business tax payments.

Patientory had the pleasure of experiencing Cleveland’s technological drive at the inaugural Blockland Solutions: Blockchain for Business & Government, a conference at the start of December. Both the presentation and the healthcare panel featuring CEO Chrissa McFarlane went very well, and we were highlighted as a premier blockchain company. We also discovered opportunities to build case studies with healthcare organizations for enterprise-level adoption of blockchain.

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Public Health

Lessons in Health Data Management from the General Data Protection Regulation

This year, in the European Union, the General Data Protection Regulation (GDPR) came into effect. The GDPR is groundbreaking legislation for consumer rights when it comes to data protection. We all create data everywhere we go with our internet-enabled devices, but the use of that data is still largely unregulated. The GDPR was enacted to ensure that organizations comply with the following actions:

  • Fully inform consumers about the type of data being collected
  • Obtain explicit consent from consumers to gather their data
  • Allow consumers to access their data and request corrections
  • Give consumers the option to withdraw their consent at any time

When it comes to gathering and using health data specifically, Patientory believes these actions are vital to maintaining trust between patients and providers. Today’s electronic medical records struggle with issues of interoperability and cybersecurity, and we need to reimagine the future of health information management. This is why we developed our distributed application: to empower individual consumers to easily manage and control access to their own health data. Join us.

Categories
Blockchain Events

Patientory Participates in a Healthcare Panel at Blockland Cleveland

Yesterday, Patientory Founder and CEO Chrissa McFarlane was one of the panelists for the Healthcare Block Study during Blockland Solutions: Blockchain for Business and Government. Blockland Solutions, Cleveland’s first blockchain conference, continues through today and has a focus on real-world problem solving and business and government applications of blockchain technology. Check out images from the panel in the gallery below.

Panelists Pictured

Akram Boutros, President & CEO, The MetroHealth System

Evin McMullen, Project Lead at Linnia, a startup within the ConsenSys family of companies

Stephanie Perez, Associate Director, R3

Dr. Shane McNamee, Chief Medical Officer, mdlogix

Chrissa McFarlane, Founder & CEO, Patientory